On my second marrige to a totally wonderful man. Mother of two angels Ema who is 4 and Jake who is 12 who has Kabuki Syndrome. I am the Queensland Representative and the Secretary for this wonderful group.
Support Group/s (name/s of the groups you have a 'leadership' role with or are a member of)
www.sakks.org Supporting Aussie Kids with Kabuki Syndrome Inc
About your group/s
We are there to help parents and relatives through the Kabuki minefield with free membership, free newsletters and support and free hugs.
I am launching a new eMagazine called CL!Q and I'd like to invite everyone to contribute and participate.
CL!Q's main focus is stories and articles about people. The stories will cover a wide range of experiences - from sharing business successes,…
I am launching a new eMagazine called CLIQ and I'd like to invite everyone to contribute and participate.
CLIQ's main focus is stories and articles about people. The stories will cover a wide range of experiences - from sharing business successes,…
When you hear the words “Women’s Health Hero,” who comes to mind? Your 9th grade health teacher who taught you about sexually transmitted infections? The midwife who sat with you through 15 hours of labor? The young Nigerian activist you read about…
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